Welcome!

Thanks for checking out my blog! I've decided to run 12 races in 2012 to raise money for Diamond Blackfan Anemia (DBA) research and to promote the bone marrow registry.

DBA is a very rare bone marrow disorder. People with DBA produce very little or no red blood cells. DBA patients are typically diagnosed within their first year of life. The majority of DBA patients require transfusions or corticosteroid medication. Some have bone marrow/ stem cell transplants.

My sister, Lizzie, was diagnosed at 6 weeks old and it is for her that I run.

Friday, December 21, 2012

Almost there!

Just one run left- one that I will finish tomorrow. In the 32 degree weather that December in Massachusetts promises, I will lace my up shoes one last time in the quest to run 12 runs in 2012 to raise money for DBA.  This has been an interesting journey spread out over many months- some that I ran a lot of races some that I ran none. Some runs were empowering and fun others were tough. In most of the longer runs it hit me- the reason I run. In all runs at least once when I thought I can’t possible run any further, faster, longer, stronger I gained inspiration from Lizzie and the things she’s done. I reminded myself- if she can be so strong for the last 18 years I can go strong for these last 18 minutes. It’s been a labor of love and dedication.

I wonder how I’ll feel when I finish running. When I complete a task I set out to do 12 short months ago. I hope I’ll feel proud of the runs I did- and even prouder of the funds I’ve raised. I hope I’ll feel accomplished yet unfinished- because until there is a cure for DBA the work is never done.  I’m sure I’ll start thinking of the next thing I can do to raise more money. The next way to get people to understand the dire need for blood and blood products. The next idea to spread awareness of how important you  can be to someone else by registering to donate bone marrow- and more importantly by actually donating if you are ever called.

So until then, until tomorrow hopefully a few minutes before 9:30 a.m. EST (let’s shoot for PR!), I look forward to being near the end of this journey.. and near the beginning of another.

Like Steve Jobs said so very eloquently, “stay hungry, stay foolish.” And that’s what I plan to do.


(to donate visit: http://dbafoundation.org/donate/ mention Amy or Lizzie in the purpose)

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