Welcome!

Thanks for checking out my blog! I've decided to run 12 races in 2012 to raise money for Diamond Blackfan Anemia (DBA) research and to promote the bone marrow registry.

DBA is a very rare bone marrow disorder. People with DBA produce very little or no red blood cells. DBA patients are typically diagnosed within their first year of life. The majority of DBA patients require transfusions or corticosteroid medication. Some have bone marrow/ stem cell transplants.

My sister, Lizzie, was diagnosed at 6 weeks old and it is for her that I run.

Sunday, November 4, 2012

Back at it!... and Lizzie Bell news

12 runs in 12 months...or 6 runs in two! Oops! It's safe to say that procrastinating has gotten the best of me yet again! So as we go into the final two months of the year I have the following runs to complete:

Hot Chocolate 15K (11/4/12) - DONE
Perfect 10 10 miler (11/10/12)
Lincolnwood Turkey Trot  8K (11/18/12)
Rudolph Ramble 8K (12/9/12)
Jingle Bell Run 10K (12/15/12)
Central Mass Striders 5K (12/22/12)

A lot of running, a lot of early mornings and a lot of dedication. But for one very good cause and one special and especially weird sister!! :) In total I will run approximately 86.4 miles to raise money for Diamond Blackfan Anemia! My first run back went much better than I anticipated, especially considering I haven't really been running since my last race. Glad to know I still got it ;)
Run #7!!

The big draw for the Hot Chocolate 5K/15K  is the post run finishers mug- filled with chocolate fondue, hot chocolate, rice krispy treats, marshmallows, banana and apples. It was definitely a good finish to 9.3 miles of running. Below are pictures of Mike and I post run!


Lizzie Bell News:  As I mentioned in my first blog post, Lizzie only has about 10% functioning bone marrow. At her last appointment in July we found out a few things. 1- Lizzie only has between 5-10% functioning bone marrow and 2- we have a tentative bone marrow match.  With that information, we are taking steps to prepare for a bone marrow transplant scheduled tentatively for July. Now, there are still a lot of factors to consider. The donor agreeing to donate - and still being able to. The donor being a match for Lizzie upon further testing. Lizzie's iron levels going low enough to transplant safely etc. I will be sure to keep everyone posted as we know more- which we should when she has her next appointments in December. But, until then- as always- please be sure to keep her, her donor and her doctors in your thoughts and prayers so we can move onto this next journey as safely and prepared as possible.

And lastly, of course, please donate to DBA research to keep funding a cure and better treatment! Thank you everyone for your support so far! http://www.dbafoundation.org/donate.php (don't forget to mention Amy or Lizzie in the purpose)

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